The Team Julian Foundation is proud to be a contributor to the new book, Understanding the Journey: A Parent’s Guide to DIPG, released in June 2012 by the American Childhood Cancer Association and edited by Ruth I. Hoffman, MPH.

At 368 pages, the book provides practical and clinical information for families, doctors and caregivers who are faced with the complexities of the diffuse intrinsic pontine glioma, one of the deadliest pediatric brain tumors that currently has no known cause or cure.

Chapters include information about diagnosis, imaging, pontine function and anatomy, steroid treatment, radiation therapy, radiosensitizers, surgery, and chemotherapy and biologics. Each chapter concludes with parent perspectives on each topic – poignant, first-person accounts of their own experiences caring for their child diagnosed with DIPG.

Nettie Boivin, president of The Team Julian Foundation, contributed three parent perspectives about Julian’s experience in the chapters dealing with communication, pontine anatomy and function, and the balance of sadness and hope.

The Team Julian Foundation provided a grant to the American Childhood Cancer Association to cover distribution costs to ensure delivery of this first-of-its-kind resource to families and caregivers.

For medical staff or families interested in ordering a copy of Understanding the Journey: A Parent’s Guide to DIPG, please click here.